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Between Dog and Wolf's avatar

Sally I so appreciate you writing all this down. I was diagnosed with stage 2 NHL (in my case not follicular) for the first time in 2008. It appeared as a lump in the throat making swallowing difficult. Had chemo including Rituximab and managed 9 years remission. Sadly it came back in 2017 - this time in the colon and lung - and I had to have chemo all over again plus a very nuclear kind of chemo in preparation for stem cell transplant in 2018. At the time I was stage 4 with only a 15 per cent chance of survival. I managed to use my own stem cells but I am so grateful to all those who donate blood and stem cells as without multiple transfusions I would have struggled to make it through. Here I am 7 years later at the age of 65 and it truly feels like a miracle. Long may you both continue to outwit the shark. ❤️

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Jacqueline A Q Chainey's avatar

Thank you for sharing, it’s so helpful to hear your story. I have multiple myeloma (non-secretory so took an age to find!) and underwent a SCT (my own cells) two years ago. It was all utterly harrowing and brutal. I continue to hold our NHS in high esteem, they looked after me so well. My husband and girls are magnificently supportive but I live in dread of the “shark” and fear further treatment. But here I am, still struggling to understand what happened to me - a fit, active and healthy female - and trying to live my best life. With love to you and your family xx

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